Article | SHI 2015, Proceedings from The 13th Scandinavien Conference on Health Informatics, June 15-17, 2015, Tromsø, Norway | Meeting Sickle Cell Patients’ Unmet Needs with eHealth Tools: A Preliminary Study
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Title:
Meeting Sickle Cell Patients’ Unmet Needs with eHealth Tools: A Preliminary Study
Author:
David-Zacharie Issom: Health Informatics Centre, LIME, Karolinska Institutet, Stockholm, Sweden Alexandra Zosso: Institute of Socio-Economics, Faculty of Sciences of the Society, University of Geneva, Geneva, Switzerland Rolf Wipfli: Division of Medical Information Sciences, Geneva University Hospitals, Geneva, Switzerland Frederic Ehrler: Division of Medical Information Sciences, Geneva University Hospitals, Geneva, Switzerland Christian Lovis: Division of Medical Information Sciences, Geneva University Hospitals, Geneva, Switzerland Gunnar Hartvigsen: Norwegian Centre for Integrated Care and Telemedicine, University Hospital of North Norway, Tromsø, Norway / Department of Computer Science, University of Tromsø – The Arctic University of Norway, Tromsø, Norway Christian Kjellander: Department of Medicine, Division of Hematology, Karolinska University Hospital and Karolinska Institutet, Stockholm, Sweden Kaveh Samii: Department of Hematology, Geneva University Hospitals, Geneva, Switzerland Sabine Koch: Health Informatics Centre, LIME, Karolinska Institutet, Stockholm, Sweden
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Full text (pdf)
Year:
2015
Conference:
SHI 2015, Proceedings from The 13th Scandinavien Conference on Health Informatics, June 15-17, 2015, Tromsø, Norway
Issue:
115
Article no.:
011
Pages:
66-77
No. of pages:
12
Publication type:
Abstract and Fulltext
Published:
2015-06-26
ISBN:
978-91-7685-985-8
Series:
Linköping Electronic Conference Proceedings
ISSN (print):
1650-3686
ISSN (online):
1650-3740
Publisher:
Linköping University Electronic Press, Linköpings universitet


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Background: Sickle cell disease is the most prevalent inherited blood disorder in the world. It can lead to many life-threatening chronic issues and comorbidities. The prevalence of the disease is more important in developing countries. In developed countries, self-help solutions for chronic patients are rising and are increasingly used. E-Health tools become companions for selfmanaging patients. Problem: The use of mobile applications to support the selfmanagement of chronic diseases has proved to improve the quality of life of patients. We try to identify the opportunities for people with Sickle Cell disease created by the use of such tools and investigate what are the patients’ main concerns. Method: We have performed a literature review to under-stand the main challenges of the disease. Additionally, we sent a questionnaire to patients to identify their needs. Finally we researched how the potential use of eHealth tools and Information and Communication Technologies based solutions could resolve some issues. Results: The literature review has shown a low number of contributions but these studies had mainly positive outcomes. The results of the questionnaire have shown a significant dissatisfaction from patients about the health care system taking care of them. Patients’ responses also showed their will to improve their general knowledge about the disease and their interest in using e-Health tools for improving their quality of life.

Keywords: Sickle cell disease; eHealth; mHealth; self-care; self-management; self-monitoring; self-help devices; wearable devices; quantified self; public health informatics; global health; uHealth

SHI 2015, Proceedings from The 13th Scandinavien Conference on Health Informatics, June 15-17, 2015, Tromsø, Norway

Author:
David-Zacharie Issom, Alexandra Zosso, Rolf Wipfli, Frederic Ehrler, Christian Lovis, Gunnar Hartvigsen, Christian Kjellander, Kaveh Samii, Sabine Koch
Title:
Meeting Sickle Cell Patients’ Unmet Needs with eHealth Tools: A Preliminary Study
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SHI 2015, Proceedings from The 13th Scandinavien Conference on Health Informatics, June 15-17, 2015, Tromsø, Norway

Author:
David-Zacharie Issom, Alexandra Zosso, Rolf Wipfli, Frederic Ehrler, Christian Lovis, Gunnar Hartvigsen, Christian Kjellander, Kaveh Samii, Sabine Koch
Title:
Meeting Sickle Cell Patients’ Unmet Needs with eHealth Tools: A Preliminary Study
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